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Annual Hao-Fountain Syndrome Awareness Virtual Walk/Run - April 1 - May 31
Join us for a virtual walk/run to celebrate Hao-Fountain Syndrome Awareness Day. Hao-Fountain Syndrome Awareness Day is April 7. You can walk or run your race any day in April or May. Simply register and create a team or join an already existing team. Then ask friends and family to join or support your team. You'll have a chance to customize your fundraising page to let supporters know why Hao-Fountain Syndrome Awareness is important to you and fund research for a treatment or a cure!
What is Hao-Fountain Syndrome?
Hao-Fountain Syndrome is a neurodevelopmental disorder caused by a mutation of the USP7 gene. The USP7 gene is a protein-coding gene that plays a role in tumor suppression, transcriptional regulation, immune response, and endosomal protein recycling. Mutations are either point mutations or gene deletions. Currently, there are only 120 people world-wide with this diagnosis. You can learn more about Hao-Fountain Syndrome by visiting our website at www.usp7.org.
Interested in a 5k Walk/Run shirt? Check out our race day shirts and other items available now in our store. (Use Promo Code: AWARENESS by February 28 to save 10% on Awareness Day merch!)
You're all set. A copy of your receipt will be emailed to you.
Want to show your support even more?
Order your Hao-Fountain Syndrome Day Awareness 5k Walk/Run shirt today! In addition to our 5k shirts, we have many other items available in our store as well. Make sure to check it out today!